Action for M.E. is the only charity in the UK supporting people with M.E. of all ages and our services have often been referred to as a ‘lifeline’ by those who have accessed them
Advocacy workshop
We have a Self Advocacy workshop on Housing for people with M.E./ CFS or PVF at 2pm on Thursday 26th January. You can sign up by emailing scotland@actionforME.org.uk
Genetics
The world’s largest genetic study into ME/CFS, Decode ME, is now open for people to take part from their home. People can get more information on how to take part here. Following an initial questionnaire, participants who meet the study’s criteria will be mailed a collection kit and asked to send back a saliva sample to be compared to the DNA of individuals in the control group
Learn about ME
We are continuing to work in partnership with #MEAction Scotland, the ME Association and the 25% M.E. group to deliver medical education to health and social care professionals across Scotland and the UK. Through this project we promote a free online learning module on the diagnosis and management of symptoms of ME/CFS. The module is currently being refreshed and will be soon be re-launched. This is accompanied by a series of podcasts. We now have six episodes and will soon release a seventh episode on Physiotherapy in the coming weeks. We have a template letter that people with M.E. can use to encourage their GP, practice nurse or any other allied health professional or therapist to take the learning module. We also have a webinar for social care professionals.
Action for M.E. also offer a wide range of information, support and services to people with M.E. more information is available on our website. If you want further information on anything then please contact Avril McLean who will get back to you with further information on any area of our work.
